tag:blogger.com,1999:blog-319735422011-11-27T16:07:43.040-08:00Musings about Life and Lili, who was Diagnosed with Type 1 Diabetes in June 2006Michellenoreply@blogger.comBlogger901100tag:blogger.com,1999:blog-31973542.post-59307807790819155112009-12-23T09:57:00.001-08:002009-12-23T09:57:07.605-08:00

If The Grinch Had DiabetesPosted using ShareThis

Michellenoreply@blogger.com43tag:blogger.com,1999:blog-31973542.post-60842449564312394922009-12-09T16:50:00.001-08:002009-12-09T16:53:31.034-08:00

DIABETES: A DEEPER LOOK TOURING EXHIBITWILL HELP EDUCATE MILLIONS ABOUT DIABETESExhibit to Open in Detroit on December 5 Before Embarking on Three-Year U.S. Tour Nearly 24 million Americans are living with diabetes, including an estimated 5.7 million who remain undiagnosed. Beginning this fall, a new touring exhibit called Diabetes: A Deeper Look will help to educate the American public about

Michellenoreply@blogger.com4tag:blogger.com,1999:blog-31973542.post-81158478757959248132009-11-14T11:39:00.001-08:002009-11-14T11:39:44.613-08:00

Michellenoreply@blogger.com1tag:blogger.com,1999:blog-31973542.post-86406173639303703522009-10-05T17:57:00.001-07:002009-10-05T17:59:55.483-07:00

We had a great day at the walk yesterday! This was our tent, we had a Pippi Longstocking theme and asked everyone to wear two different socks. It was a ton of fun, and we surpassed our team fundraising goal, which was very exciting. Thanks everyone who joined us yesterday!

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-6875286099209544592009-09-24T22:14:00.000-07:002009-09-24T22:17:52.883-07:00

Went to see the first strike-offs of the new t'shirt design at Abra Kazam and they are gonna be awesome! Again a HUGE thanks to Amy Ruppel for her magnificent design. I can't wait to wear it! We are also printing a few special edition canvas tote bags that will be given as prizes, so crank up that fundraising and you might be the lucky winner!

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-53615287036256532112009-09-21T18:28:00.001-07:002009-09-21T18:32:49.920-07:00

sample sale at baby star on 9/25 from 9am-2pm!please join us for our big blow-out sample sale this friday, september 25th! we will have amazing prices on our amazing baby star clothing and accessories and other brands are joining the fun too ... bunk bots, eleven collection shoes, hula mula, knuckleheads, picaflor kids and simple shoes.baby star sample salefriday, september 25th9am - 2 pm1801 nw

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-44052009639027023442009-09-13T14:23:00.001-07:002009-09-13T14:30:30.073-07:00

Two Stop & Co Convenience Stores in Seaside Oregon have "stepped up" to sell sneakers for a cure for our JDRF walk team! If you are heading out to the beach, make sure to stop in and say hello and buy a sneaker!There are two locations1625 N Roosevelt Dr860 S Roosevelt DrThanks Stop & Go!!!

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-40686144256600792292009-09-05T17:49:00.000-07:002009-09-05T17:56:40.215-07:00

Westmart market in Westport, Oregon is selling sneakers for the JDRF and team Hi Lili Hi Lo. We drove out to visit them today and were excited to see their wall of sneakers growing! They sold 10 while we were there, and hope to sell about 100 more over this busy labor day weekend holiday. Lili counted about 150 on their walls, and added one of her own as well.If you are heading out to Astoria on

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-89523629092657108552009-09-05T11:23:00.001-07:002009-09-05T11:27:42.833-07:00

The Northwest Independent Baseball League and the MOSA Umpires have joined Hi Lili Hi Lo in our fundraising efforts this year. NWIBL pledged to donate $10 for every homerun hit this season and they hit 24 out of the park! The umpires also got into the game after they met and talked with Lili, and made a generous donation of their own. Pictured here are some of the illustrious home run hitters and

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-7975435757424757032009-09-05T11:17:00.001-07:002009-09-05T11:22:12.801-07:00

Our new team t'shirts designed by the fabulous Amy Ruppel, portland artist and designer who graciously designed our shirts for us this year. This lovely shirt can be yours if you join our team and raise $50The JDRF Walk to Cure Diabetes in Portland is on October 4th at Oaks Park. To join or donate to our team please click on the links on the right side of the page.We hope you will join us again

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-18507103332167255872009-07-02T11:38:00.000-07:002009-07-02T12:32:32.767-07:00

click here to see the CC09 delegates and President Obama. My delegate is at the very beginning smiling at the camera.We plan to keep up the momentum and plan some exciting meetings here in Oregon for the Promise to Remember me Campaign in August. If you have not yet signed up to be a mobile advocate click on the handy link to the right and join all of us who want a cure for type 1

Michellenoreply@blogger.com1tag:blogger.com,1999:blog-31973542.post-23018953064997735492009-06-25T06:09:00.000-07:002009-07-02T12:20:21.542-07:00

Updating this post with a great link to the senate hearing and some photos.click here for the PR Newswire testimony coverage.Mary Tyler Moore spoke candidly about how her eyesite has been drastically comprimised due to complications from type 1, and Sugar Ray's "No Mas" speech was incredibly moving. Nick Jonas was compelling and quite brave to speak openly about his frustrations about having type

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-62667996379107017392009-06-23T16:56:00.000-07:002009-06-23T17:24:38.460-07:00

Well, it was quite an eventful day at Children's Congress! The kids were all taken to the white house this morning to meet the President and were surprised with a guest appearance by Nick Jonas! A rock star and a world leader - how will I ever top that next summer! There is an article on the people website that talks a little about this eventIn addition to that we were all invited to hear

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-67328544951242345242009-06-22T18:29:00.001-07:002009-06-22T18:34:04.366-07:00

Just turning in from our first day in DC for the JDRF Children's Congress. We learned about a half an hour ago that the 150 children delegates will get to meet and take a picture with President Obama tomorrow morning. This is a really amazing suprise and everyone is very excited about it!The photo is of the kids rehersing the Promise to Remember Me song to sing on the steps of the capital on

Michellenoreply@blogger.com1tag:blogger.com,1999:blog-31973542.post-22048333467975471772009-06-19T21:15:00.000-07:002009-06-19T21:23:11.173-07:00

We are off to Washington DC to represent Oregon at the 10th JDRF Children's Congress. We are so excited to get this opportunity to make a difference and to be able to speak about why we feel it is so important to continue to fund research and programs to help find a cure for type 1 diabetes. It will be three years for L on June 26th. Can't think of any better place to be than in DC for this event

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-16011636303282758032009-03-22T13:39:00.000-07:002009-03-22T13:45:19.198-07:00

Mary Tyler Moore's new book Growing Up Again: Life, Loves, and Oh Yeah, Diabetes, will be in book stores March 31st. It is sure to raise much needed awareness about type 1 diabetes. She is donating all the author's proceeds from book sales to the JDRF. Thanks Mary!She will be appearing in these shows:March 24th - Late Night with David LettermanMarch 31st - Good Morning AmericaApril 2nd - The

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-33143854265611655832009-03-08T23:54:00.000-07:002009-03-08T23:59:09.533-07:00

The 2009 DiabetesMine™ Design ChallengeWelcome to the 2009 DiabetesMine™ Design Challenge, an online competition to encourage creative new tools for improving life with diabetes.Do you have an idea for an innovative new diabetes device or web application? This is your chance to win up to $10,000 to realize your design concept, and potentially help transform life with diabetes for millions of

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-47712083143808857382009-02-01T20:59:00.001-08:002009-02-01T21:03:04.114-08:00

We met Jacob at the Oregon Humane Society today. Jacob has diabetes and we hope we can find a home for him. Here is the link to how to adopt or sponsor him:Name: Jacob Code Number: 72222 Date Available: 12/7/2008 Adoption Fee: $35Breed: Domestic Short Hair/Not Specified Pattern: Brown Tabby Color: Brown Tabby/WhiteGender: Male Age: 10 Yr Weight: 15.0625 lbs. Location:

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-72516499681375065222009-01-24T10:38:00.001-08:002009-01-24T10:45:09.275-08:00

We have great news to share! Liliana was selected to represent Oregon in Washington DC this June as part of a 150 member Children's Congress!She wrote an essay addressing several required topics and was selected out of 1500 applicants. She will attend meetings with our Senators during a "hill blitz" and experience advocating for a cure for type 1 diabetes in our nations capitol. We are all amazed

Michellenoreply@blogger.com2tag:blogger.com,1999:blog-31973542.post-24858150312736021292008-09-15T17:52:00.000-07:002008-09-15T18:03:42.239-07:00

Michellenoreply@blogger.com1tag:blogger.com,1999:blog-31973542.post-47599605730016290862008-08-27T16:05:00.001-07:002008-08-27T16:08:29.105-07:00

This is our new special edition Hi Lili Hi Lo t-shirt! It was designed for Lili by the ever talented Raina Telgemeier, illustrator of the Baby-sitters Club Graphic Novels! It is a drawing of Stacey, a character in the books, who also has type 1 diabetes.These will be made for the kids on our team only, or you can buy one for a $10 donation.How cool is that!

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-69684757285342936822008-07-21T16:51:00.000-07:002008-12-11T13:46:19.179-08:00

Michellenoreply@blogger.com2tag:blogger.com,1999:blog-31973542.post-37549394397299695592008-05-20T02:54:00.000-07:002008-12-11T13:46:19.368-08:00

We have had a rough quarter. Lots of high numbers, lots of bounces and swings, it has been so frustrating for L. Well, we got a clue as to why at clinic last week. I have been so proud of her doing her own shots, but apparently she does them in the same place everytime and has made the sites so lumpy that she has become a bit insulin resistant.Mystery solved, she is now struggling with lows while

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-91643107061920572232008-04-20T11:20:00.000-07:002008-04-20T11:22:44.060-07:00

Check out this great auction for the JDRF! I learned about it this weekend at the Oregon Diabetes Educators conference. I went to volunteer for our chapter of the JDRF and met some interesting people. An educator told me about this auction put on by best selling author Brenda Novak.Happy Bidding!

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-72874959765773014182008-04-05T15:40:00.000-07:002008-12-11T13:46:20.279-08:00

April 11, 2007, Washington, DC - The Juvenile Diabetes Research Foundation, the world's largest charitable funder of type 1 diabetes research, praised today's historic vote in the U.S. Senate to expand federal funding for embryonic stem cell research with the passage of S. 5, the Stem Cell Research Enhancement Act of 2007. This bill was Vetoed by President Bush. Twice. Today I went to a town hall

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-17092558536226118152008-04-04T19:17:00.001-07:002008-12-11T13:46:20.394-08:00

I agreed to let L go to an all girls sleepover at her school tonight. There are 35 girls from the age of 7 to 12 and 5 adults. L is they only one with T1. I must have been asleep when I said yes. Actually, I didn't say yes: Not officially. Her dad bought it as a gift for her at the school auction. "It will be fun for her," he assured me. What about me?I spent the morning telling a good friend who

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-68698494605275221012008-03-31T04:10:00.000-07:002008-12-11T13:46:20.624-08:00

I wrote this book. Yup...But I am not posting it because I feel the need to brag. I am proud of it, indeed, however I need to talk about the irony of this after what happened tonight.L loves pasta - of course she does, or I would have never written a book called the Ravioli Kid. Tonight I bought some fresh organic ravioli for her dinner. She took one bite, after her insulin shot, of course, and

Michellenoreply@blogger.com1tag:blogger.com,1999:blog-31973542.post-77158703824640085652008-01-18T16:12:00.000-08:002008-12-11T13:46:20.738-08:00

Saturday, April 12thThe Governor HotelPortland, Oregon

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-89393185986478151982008-01-05T16:06:00.000-08:002008-12-11T13:46:20.854-08:00

I havn't posted a rant in a while, but here goes. I forgot to reorder test strips and realised we were down to one container of 25 strips. We usually order a 3 month supply that is mail order (another rant for another time) so getting them that way today, was out of the question. I called a local pharmacy and discovered you could buy them over the counterFOR A DOLLAR EACHWWWHHHAAATTT????My

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-13591748029335726792007-12-28T18:12:00.001-08:002008-12-11T13:46:21.005-08:00

We had a great day making bracelets at the 100th Monkey Studio today. We had so much fun designing the syringe caps and making them into beads! We made almost 50 bracelets!Next step is to put the written piece together and bring it to the hospitals next week. I have templates for kids and parents to fill out. If you want to send your story and advice let me know and I will send you the template

Michellenoreply@blogger.com2tag:blogger.com,1999:blog-31973542.post-5710548180515928012007-12-06T17:47:00.000-08:002008-12-11T13:46:21.299-08:00

Calling all T1s, their parents, and their silblingsI am putting together a Newly Diagnosed Survival Guide to bring to families who are in the hospitals over the Winter Holiday. So many kids are diagnosed this time of year I thought it would be a good thing to do. I would like to include your blogs, stories, advice, recipes, anything you would like to share,Thanks (in advance) for posting!

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-91245228292694547382007-08-01T19:57:00.000-07:002008-12-11T13:46:21.504-08:00

Planter Girl, 2007, 16x20 framed $165, 10x8 unframed, $85Dunes, 2007, 16x20 framed $165, 10x8 unframed, $85Two of my photos which are in an art exhibit in Portland, OR Aug 3 - Sept 8th. I am donating all my proceeds to the JDRF. If you want to purchase them please call the 100th Monkey Studio503-232-3457or click on the linkwww.the100thmonkeystudio.com

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-42784240478927791142007-06-26T16:08:00.000-07:002008-12-11T13:46:21.697-08:00

Lili Rocks!

Michellenoreply@blogger.com2tag:blogger.com,1999:blog-31973542.post-80490309288948514562007-06-14T14:12:00.000-07:002007-06-15T13:30:14.519-07:00

Rock Against Diabetes NW announces Tom's Ride 4 a Cure, a bicycle journey to spread awareness about Type 1 diabetes and raise funds for the Juvenile Diabetes Research Foundation. All funds raised go toward Tom Kilman's goal of $4,000, with which he will be able to represent Oregon in the JDRF Ride to Cure Diabetes in Whitefish, Mont., Sunday, Sept. 23.Kilman, who is not a professional bicyclist,

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-62139901401991620932007-06-12T09:30:00.000-07:002008-12-11T13:46:22.182-08:00

Portland is probably the only city in the universe where you can ride an ariel tram to visit the doctor. This was what we did for L's clinic appointment recently. Clinics are nerve-racking enough. Add flying in the air several hundred feet above freeways, mountainsides, and houses, and you've got yourself a swell day planned.All sarcasam aside, I bought the second graphic novel to give to L to

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-47739859804594691442007-05-13T13:25:00.000-07:002008-12-11T13:46:22.264-08:00

"Who is Stacey?" I ask half listening as I was driving L to school the other morning. "She is one of the babysitters" she answers impatiently."What? You don't have a sitter named Stacey," I respond, suspiciously."No, Mom, you don't get it. Stacey is from the Baby-sitter's Club - you know, the book?"Oh, yeah, the book we got from the library that is now at least 3 weeks overdue. I had forgotten

Michellenoreply@blogger.com4tag:blogger.com,1999:blog-31973542.post-25728538305948812392007-04-02T18:33:00.000-07:002008-12-11T13:46:22.517-08:00

We have gotten some amazing items for our inspired item basket! One of the coolest in my oppinion is that we made stamps with the Magical Mystery Cure design I drew. You can make stamps with your artwork or photos at a few different places on the web - we did it at www.stamps.com.Postage is going up to $.41 by the way!

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-18432433975476950152007-03-19T22:47:00.000-07:002008-12-11T13:46:22.654-08:00

We are putting together and "Inspired Item" package for the JDRF gala auction inspired by Beatles songs!So far we haveA silver heart braclet (St. Pepper's Lonley Heart Club Band)The Beatles Anthology DVD Box SetIpodOur wish list includes:Gift certificate for coffee (So Tired)Gift Certificate to a book store (Paperback Writer)A Guitar (While my guitar gently weeps) Roll Over Beethoven (Symphony

Michellenoreply@blogger.com2tag:blogger.com,1999:blog-31973542.post-11280038158724319092007-03-11T21:26:00.000-07:002008-12-11T13:46:22.889-08:00

The 8th Annual Hope GalaMay 5, 2007The Governor HotelPortland, Oregon6 p.m.Honoring Albert Menashe2007 President of the Oregon State BarSpecial recognition toDr. Andrew Ahmann fromOregon Health & Science UniversityCocktail party and silent auction with music by Alfredo Muro Latin EnsemblePresentation of the 2007 Living & Giving Award to Albert MenasheGourmet candlelit dinner and live auction full

Michellenoreply@blogger.com2tag:blogger.com,1999:blog-31973542.post-78492234402546646482007-02-22T18:10:00.000-08:002008-12-11T13:46:23.070-08:00

Balancing goldfish crackers, apples, and insulin shots. A burden with every biteGrappling with a child’s diabetesBy Louanne MoldovanFebruary 14, 2007In our home, food wields great power. It nourishes, of course. It also instills fear, worry, hope, and dread. It must be handled with great care, as it is conscientiously counted, weighed, measured, and timed. One moment, it is approached with

Michellenoreply@blogger.com1tag:blogger.com,1999:blog-31973542.post-29596409369879561892007-02-17T13:51:00.000-08:002008-12-11T13:46:23.308-08:00

Thanks to everyone who has donated to Gales Creek Camp so far! Look at the Six Degrees badge to the right to see how many donations we have and how much we have raised! This is great and exciting news! The only bummer is I have no idea who donated...if you want to be anyomous, thats cool, if not, please leave a comment in the comment box for this post.Also, when you make a donation, you have an

Michellenoreply@blogger.com2tag:blogger.com,1999:blog-31973542.post-3635448315403219732007-02-09T19:43:00.000-08:002008-12-11T13:46:23.493-08:00

Check out my new charity badge at the top of my blog! I recently discovered this cool fundraising contest from another D-mom and decided to check it out for myself. I was excited to see that I could fundraise for Gales Creek Camp - which I hope to send L to this summer.So, if you are feeling generous, please make a donation by clicking on the link on the badge. The six badges that have the most

Michellenoreply@blogger.com2tag:blogger.com,1999:blog-31973542.post-43776922685462391722007-02-03T19:52:00.000-08:002008-12-11T13:46:23.628-08:00

Wednesday, January 31, 2007 The Oregonian T he day his 2-year-old daughter, Becca, was diagnosed with Type 1 diabetes, was the worst day -- and the best day -- of Ralph Yates' life.The fact that he was a successful doctor and an Iron Man triathlete didn't mean diddly. He couldn't cajole Becca's body to produce insulin.He was just as angry, sad and worried as the rest of the parents in the

Michellenoreply@blogger.com1tag:blogger.com,1999:blog-31973542.post-90004804692348409002007-01-30T22:30:00.000-08:002008-12-11T13:46:23.811-08:00

Well, we have reached the "full" line on our first 2 gallon sharps container, the cute pink one they gave L at the hospital. I estimate it contains 420 hypodermic needles. Not counting mistakes, of which there have been many tossed in the bin...420 plus mistakes. 420 injections my kid has barely complained about. 420 shots in her arms, thighs, and tush. 420 times one of us has said, "L, it is

Michellenoreply@blogger.com1tag:blogger.com,1999:blog-31973542.post-79618609087271085722007-01-27T14:39:00.000-08:002008-12-11T13:46:23.932-08:00

I have a history of Diabetes in my family. My dad has type two, his sister had type one (she was diagnosed when she was 11), and my husband's father also has type 2.On December 25th, my dad, who is 70 was hospitalized for renal failure (kidney failure). We were told he had less than 24 hours to live. While my youngest sister flew out from Maine, my other sister and I juggled hospital visits,

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-58406916146256839992007-01-21T12:23:00.000-08:002008-12-11T13:46:24.198-08:00

Yesterday my husband left for a weeklong trip to Asia for work. We were both nervous about me handling L's diabetes round the clock without any breaks. We wrote lists, reviewed our notes, made more lists, hung them on the refrigerator, checked our supplies, checked again, and tried to to be nervous or stressed out infront of L.When he left we both felt okay that things would be okay. "I promise

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-17126492820679543362007-01-18T10:32:00.001-08:002008-12-11T13:46:24.314-08:00

This has been one of our favorite tools to learn about diabetes over the last 6 months. We have these in the car and in magnet form on the fridge. They are designed to help figure out carb counts for foods. The design is great (although a live "chicken" on the poulty card is a bit more disturbing than say, a fried chicken leg...)they have other terrific prouducts on their websitecheck them out!

Michellenoreply@blogger.com2tag:blogger.com,1999:blog-31973542.post-15045609607518358962007-01-14T11:23:00.000-08:002008-12-11T13:46:24.481-08:00

Diabetes Art Therapy Support Group for KidsThis group will run one time per month (the third Thursday) and is lead by Beth Ann Short ATR. This art therapy group is for participants 18 and younger. This group furnishes older kids with the opportunity to be role-models/mentors to younger children newly diagnosed. Younger participants will see hope in their stories. The Diabetes support groups are

Michellenoreply@blogger.com1tag:blogger.com,1999:blog-31973542.post-26775303333522928942007-01-10T18:32:00.000-08:002008-12-11T13:46:24.657-08:00

URGENT STEM CELL ACTION ALERTU.S. House of Representatives to Vote on H.R. 3 TOMORROW!Contact Your Representative by TOMORROW!As a result of all of your hard work over the past few years, House Speaker Nancy Pelosi has made expanding federal support for embryonic stem cell research a top priority for the new Congress. Continuing the momentum that we’ve worked so hard to build by securing another

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-64812202493136176492007-01-06T11:07:00.000-08:002008-12-11T13:46:24.783-08:00

I had these necklaces made for holiday gifts by an amazing local artist Gretchin Lair. The "Imagine a cure" tag hands in front of the "type 1 diabetes". You can custom order these and other designs from her. Check out her website:http://scarletstarstudios.com/wordwear/

Michellenoreply@blogger.com1tag:blogger.com,1999:blog-31973542.post-78879285554068438222007-01-02T20:47:00.000-08:002007-01-02T20:57:52.972-08:00

Last day of Winter break. I wanted to do something fun with L so I planned to meet some friends for lunch and then go to a matinee. I asked her to test in the car on the way to the restraunt and she was over 433.433? What? That is really high. Her target is 80-180. We had started the morning with a mid 200s, but 433? I didn't know what to do. Do I give her the regular amount of carbs for lunch?

Michellenoreply@blogger.com1tag:blogger.com,1999:blog-31973542.post-1167715733566362012007-01-01T21:19:00.000-08:002007-01-01T21:28:53.576-08:00

We rang in the new year watching L scale a 41 foot rock climbing wall like spider woman. She is proud of the bruises on her knees and can't wait to do it again. I didn't panic once during her climb (compared to the rock climbing camp she took this summer when I sat outside waiting to breathe for four hours a day) and was truely excited when she made it to the top of the wall - not because she

Michellenoreply@blogger.com1tag:blogger.com,1999:blog-31973542.post-1166910195665953012006-12-23T13:42:00.000-08:002006-12-23T13:47:40.656-08:00

Researchers reverse diabetes in miceBy Randall PalmerFri Dec 15, 5:57 PM ET OTTAWA (Reuters) - Nerve cells in the pancreas may be a cause of type-1 diabetes in mice -- a finding that could provide new ways to treat the disease in humans, Canadian and U.S. scientists said on Friday. Defective nerve endings may attract immune system proteins that mistakenly attack the pancreas, destroying its

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-1165451578897261602006-12-06T16:31:00.000-08:002006-12-06T16:32:58.936-08:00

L has been in the target for two days in a row. She has been complaining about headaches, however, so we are keeping a eye on that.She describes them as painful and they feel "like her eyes are looking at her brain." Curious...

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-1165213240523711792006-12-03T22:08:00.000-08:002006-12-03T22:22:43.986-08:00

I mentioned L was at 38 a few nights ago, but I didn't really talk about it. I have been feeling really awful about it and it took this long to feel okay to write a post.L is a picky eater. I can't blame her - I was worse. My family still makes fun of me and my plate of cherry tomatos that was at my place for every family dinner. I didn't eat salad until I was on a date in highschool and was too

Michellenoreply@blogger.com1tag:blogger.com,1999:blog-31973542.post-1165031787112458102006-12-01T19:47:00.000-08:002006-12-01T20:00:03.156-08:00

L is in her honeymoon period and according to everything I've read and have been told it can last from two weeks to four years. One of our questions at clinic last week was how we would know when the honeymoon was over."Oh, you'll know..." was our answer. Great. Thats crystal clear...not.I found out another clue today when I frantically called Dr. B. L had two lows at school today and tested over

Michellenoreply@blogger.com1tag:blogger.com,1999:blog-31973542.post-1164512171005386892006-11-25T19:29:00.000-08:002006-11-25T19:39:14.980-08:00

Another D parent recently pointed out to us that it is imperative that L get a flu shot. When you have the flu (if I have my facts straight) your liver releases stored glucose as well as a hormone that keeps insulin from processing it. This is well and good if you are not diabetic, have the flu and no appetite. Your body is built to take care of itself. However, a diabetic is balancing their

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-1164263004518086202006-11-22T22:16:00.000-08:002006-11-22T22:23:24.530-08:00

Oh Joy!Lili's A1C was 7.0. Right smack in the target. Yay for L. We had our 2nd clinic appointment today since diagnosis. We came armed with a million questions, frazzled nerves, and fear of being reprimanded for not doing middle-of-the-night tests for the last three months.The best comment from Dr. B was to make sure to give L "diabetes vacations" and do all her shots for her so she won't get

Michellenoreply@blogger.com1tag:blogger.com,1999:blog-31973542.post-1163559273411965852006-11-14T18:52:00.000-08:002006-11-14T19:37:47.350-08:00

Here is a note my friend Allison sent via email today:Happy World Diabetes Day! Okay, so that doesn't quite sound as sincere as "Merry Christmas" or "Happy Thanksgiving, because there really isn't a lot to be happy about when it comes to the global diabetes epidemic. You and I both know how important it is to find a cure for diabetes, but it's also important that diabetes is recognized as a

Michellenoreply@blogger.com3tag:blogger.com,1999:blog-31973542.post-1163394350603309932006-11-12T20:53:00.000-08:002006-11-12T21:07:15.890-08:00

This weekend I watched my daughter compete in her 2nd ice skating competition --first since her diagnosis. I couldn't believe how strong she looked. She has gained her muscles back and looks like she did a year ago, only taller and stronger. I kept staring at her in amazement - it was only 6 months ago that we were wondering why she was so thin, after looking strong and athletic her entire young

Michellenoreply@blogger.com3tag:blogger.com,1999:blog-31973542.post-1162008074507804962006-10-27T20:50:00.000-07:002006-10-27T21:58:06.160-07:00

I just finished reading a newletter sent out from the American Diabetes Association where they suggested offering your child pumpkin seeds, stickers, and wax lips instead of candy for trick or treating.Um...RIGHT. Pumkin seeds taste EXACTLY like Reeses Pieces. She won't notice a difference. No problem.Okay - truth of the matter is I am really concerned about L's first Halloween since her

Michellenoreply@blogger.com3tag:blogger.com,1999:blog-31973542.post-1160539753751742972006-10-10T20:51:00.000-07:002006-10-10T21:09:13.763-07:00

One of the most misunderstood concepts about type 1 diabetes is that you don't have to give up eating sugar. Most adults need this explained to them (I did) and most kids seem to have some information that diabetes "is when kids can't eat sugar."L did a cooking project in her class today. Her teacher found a recipe for pumpkin bread that used Stevia (a natural sugar subsitute) I tried to explain

Michellenoreply@blogger.com2tag:blogger.com,1999:blog-31973542.post-1160106076075160812006-10-05T20:38:00.000-07:002006-10-05T20:41:16.086-07:00

My friend recently opened this really cool community art studio and therapy center. She is offering some Diabetes support groups. Please spread the word if you know of someone who would be interested in coming to this!http://www.the100thmonkeystudio.com/page4.htmlCurrent Group Offerrings1. Diabetes Art Therapy Support Group for Kids10/5, 10/19, 11/2, 11/16 & 11/30from 6:30-7:45pmMembers:$80.00

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-1159933864722142002006-10-03T20:39:00.000-07:002006-10-03T20:58:54.100-07:00

Imagine you are seven. Your parents take you to a German Restraunt in town that serves authentic food - meaning no PB&J or Grilled Cheese sandwiches on the menu. So you order "Snitzel with noodles" until your mom explains that is sausage -- (Yuck...) and settle for the other thing that sounds "normal" on the kids menu ("It's the German Mac-N-Cheese" the server explains.)Now imagine you are seven

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-1159844794231061862006-10-02T20:01:00.000-07:002006-10-02T20:06:34.243-07:00

Way to go Hi Lili Hi Lo!We raised over $3,000 for the JDRF!

Michellenoreply@blogger.com3tag:blogger.com,1999:blog-31973542.post-1159336721722999822006-09-26T22:53:00.000-07:002006-09-26T22:59:23.420-07:00

Just remembered an crazy thing that was going on before L was diagnosed. We had this very aggressive mold growing in our toilets. We were cleaning it every day. Both of us thought it had something to do with the pipes. Never in our wildest imagination did we think it was because L had sugar in her urine.We connected to her diagnosis when a friend told me her grandfather, who was a cowboy, once

Michellenoreply@blogger.com1tag:blogger.com,1999:blog-31973542.post-1159243837271097252006-09-25T20:58:00.000-07:002006-09-26T22:30:50.896-07:00

UCLA Neuroscience Research Leads to a Possible Treatment for Type I Diabetes; Clinical Trial Results Are EncouragingMy sister sent me some facinating research that was published in the UCLA alumni newletter about a new vaccine being tested in human clinical trials for Type 1 Diabetes.Two neuroscientists isolated the genes for enzymes known as GAD (glutamic acid decarboxylase) which are made in

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-1159161051131274902006-09-24T21:46:00.000-07:002006-09-24T22:10:51.146-07:00

When a diabetic gets sick it can be serious. During illness, the body releases extra glucose from the liver, which can make the blood sugar levels high. Also, the substances that signal the liver to release the glucose can block the effects of insulin (1). Needless to say, a diabetic child with a cold is something to worry about.Friday L was not feeling well. The first cold/flu of the season had

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-1159050710219736692006-09-23T15:29:00.000-07:002006-09-23T15:31:50.230-07:00

L is selling recycled syringe cap bracelets she make at a neighborhood bead store. They are really cool. She is planning to give all the profits to the JDRF.Stop by (or call!) and get your now!Beads at Dusti Creekhttp://beadsatdusticreek.com/4848 SE DivisionPortland, OR 97206(503) 235-4800

Michellenoreply@blogger.com1tag:blogger.com,1999:blog-31973542.post-1158639475705419532006-09-18T21:16:00.000-07:002006-09-18T21:17:55.716-07:00

Michellenoreply@blogger.com2tag:blogger.com,1999:blog-31973542.post-1158548463653321572006-09-17T19:39:00.000-07:002006-09-17T20:01:03.706-07:00

I've never been a big fan of Pop. We have only given it to L as a treat and don't keep any in the house. When she was diagnosed, we compromised and bought sugar-free Italian soda flavors for her to mix with sparkling mineral water as her "free" sweet drink. It hasn't been that long since I was a kid - hey , I used to think cool-aid was tasty. I get it...It is hard sometimes at restaraunts when

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-1158126906128728942006-09-12T22:53:00.000-07:002006-09-12T22:55:06.136-07:00

We are going to be featured in the weekly JDRF team letter! Here is what I wrote for them:FAMILY TEAM HIGHLIGHT OF THE WEEKOn her first day of second grade last week, L was asked the classic back to school question, “what did you do last summer?” I would have expected her to answer with grueling details about insulin shots and blood tests, and perhaps a mention of her stay in the hospital where

Michellenoreply@blogger.com1tag:blogger.com,1999:blog-31973542.post-1157953250156452522006-09-10T22:33:00.000-07:002006-09-10T22:40:50.163-07:00

The first week of school was never this scary when it was me going back - but when it is my kid - geez...My week ended with an anxiety attack on Friday afternoon when I irrationally decided my studio was on fire (my studio is near L's school) and paniced. Have fun with that one on me... I think I was a bit stressed out!L on the other hand is worried about ghosts in the girls bathroom and a

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-1157510045163431932006-09-05T19:25:00.000-07:002006-09-05T19:42:15.660-07:00

Okay. I thought I was prepared for this, but I have decided there is nothing I could have done to be completely prepared for the PANIC I felt as I turned and walked out of L's school this morning. She will be fine...She will be fine...was my mantra ALL DAY today.I labored over her 504 plan. There were some dumb spelling errors, but in all I was happy with it. We put a supply kit together with

Michellenoreply@blogger.com2tag:blogger.com,1999:blog-31973542.post-1157173518646730412006-09-01T21:48:00.000-07:002006-09-01T22:08:44.386-07:00

I had many misconceptions about what Juvenile Diabetes was when L was diagnosed. Mainly I thought she would have to give up eating sugar.I try to be compassionate when someone says something to me that I know is not true, however lately I have heard some outrageous things.This is the one that has been getting under my skin lately.Myth: Some kids have a worse version of Juvenile Onset than

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-1156460683398226762006-08-24T16:02:00.000-07:002006-08-24T16:04:43.410-07:00

L has decided to do her own injections.This is her second day doing this. W*O*W!(she is 7...)

Michellenoreply@blogger.com1tag:blogger.com,1999:blog-31973542.post-1156308674722119122006-08-22T21:42:00.000-07:002006-08-22T22:02:06.570-07:00

We are working on putting together a 504 plan for L before she goes back to school in a few weeks. We went to a ADA (American Diabetes Association) training seminar on this tonight.A 504 plan is actually Section 504 of the Rehibilitation Act of 1973 and Americans with Disabilities Act of 1990 (ADA). It is a care procedure document that is created for a student with a disability that the school

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-1155965513579085142006-08-18T22:18:00.000-07:002006-08-18T22:31:53.593-07:00

2nd clininc appointment today - the doctor gave our family an A+!Here are a few things we discussed:1. When mixing insulin, you have to draw the short acting 1st (NPH) and then the long acting 2nd(Lantus). If you do it the other way around (as I have been) you contaminate the NPH and it becomes uneffective. Oops.2. Add a vile of a long acting insulin (i.e. Lantus) and syringes to any school

Michellenoreply@blogger.com1tag:blogger.com,1999:blog-31973542.post-1155601498029385212006-08-14T17:13:00.000-07:002006-08-14T17:26:14.760-07:00

This just in!We might be working with genius artist Wendy B. of Weeber World to create an original design for a juvenile diabetes fundraiser! She does the sweetist drawings of internal organs I have ever seen with the funniest captions! Check out her designs and buy stuff!http://www.weeberworld.com/

Michellenoreply@blogger.com1tag:blogger.com,1999:blog-31973542.post-1155529270681049672006-08-13T21:18:00.000-07:002006-08-14T16:58:17.480-07:00

We started with the new insulin today. She had lower numbers, but still high at dinner. A friend suggested that a growth spurt could make numbers higher - natural steroids. Interesting. Giving it another day or two. We can review with the endrocrinologist at her two month check up on Friday.stay tuned...

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-1155441961847852932006-08-12T21:00:00.000-07:002006-08-12T21:06:01.856-07:00

Two highs in a row tonight for apparently no reason. We were expecting lows after the ice skating lesson and we were off schedule - running an hour late.Blood sugar was 345. Wash your hand and retest. 324. Test again. 317. Bedtime test. over 300 again. Test for Keytones - negative (relief)For those of you who have been doing this for years this probably seems like we are crazy to worry. Maybe not

Michellenoreply@blogger.com1tag:blogger.com,1999:blog-31973542.post-1155066697689944592006-08-08T12:43:00.000-07:002006-08-09T09:37:20.426-07:00

I felt much more confident when I dropped L off at camp this morning. She was excited to be there, and yesterday went so well that I was okay when I left. Besides, we would hear from her at 11:30 - her business call...T missed her call. I missed it too. Actually I heard the phone ring, but I didn't recognise the number and I ignored it. Arrgh. What was I thinking.She was low. 65. She is supposed

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-1155000569789490212006-08-07T18:20:00.000-07:002006-08-08T12:54:22.746-07:00

my sister's friend sent us this letter when L was first diagnosed. It is great advice from someone who lives with type 1The pump is GREAT. It automatically shoots insulin every 2 -3 minutes, all day. Then when you eat, you "bolus", which means you push a button and it shoots in more. You only have to deal with a needle every other day. It's like an IV, sort of. You stick the needle in your

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-1154983585647997502006-08-07T13:37:00.000-07:002006-08-07T13:49:15.083-07:00

Dropped L off at an all-day camp today and we agreed that she would make a business call to her dad at lunch to review her numbers. This was advice that a friend gave us and we decided to try it and see if it would be a good system for us to touch base during the day.Here is the recap:"Hi Dad. My numbers were 105 at lunch, 146 at snack. Okay. Bye!"Well, that is one well adjusted seven-year-old!

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-1154891942908443372006-08-06T11:58:00.000-07:002006-08-07T01:12:50.460-07:00

Insulin - checkSyrings - checkemergency kit - checksugar free mapel syrup - OMG...This morning we decided to have brunch out - something we used to do often before L's diagnosis, and havn't done since. We had her carbs all figured out. 4" Pancakes, 17g (x2=34g8oz Hot Chocolate 30gbacon - 0gsugar free maple syrup - og for a total of 60ish carbs.No wait for tables when we get there - good, because

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-1154732157494377662006-08-04T15:48:00.000-07:002006-08-04T15:59:13.736-07:00

This is a book that Lili wrote the day she came home from the hospitaltipe one Dieabeetizby LilianaI have dieabeetez. Me, Liliana Morrisey. Well, if you have tipe one you may have to take 5 finger pocks a day jest like me.Here is another cind of shot. Its a insulin shot. A Inslin shot is wer your body is not working vary well and its not macing enof inslin.And if your body is not making enof

Michellenoreply@blogger.com1tag:blogger.com,1999:blog-31973542.post-1154650622573040252006-08-03T17:11:00.000-07:002006-08-03T17:17:02.573-07:00

So, I took a big leap this week and let Lil go to a half day camp. Walking away and leaving her in the care of the camp director and counselors was much worse than that first day of kindergarten. It was terrifying. I am happy to report that she is having a great time! She met another girl at camp who has type 1: What are the odds of that? Oh - yeah, the odds are 1 in 400... So, to ease my fears,

Michellenoreply@blogger.com2tag:blogger.com,1999:blog-31973542.post-1154576531620962382006-08-02T20:37:00.000-07:002006-08-02T20:44:18.566-07:00

This is the best bracelet EVER! We ordered some from Hope Paige designs and they came today. They have the best med-alert jewelry I have found, and this really got me to smile!http://www.hopepaige.com/

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-1154485083964989802006-08-01T19:08:00.000-07:002006-08-03T16:46:01.700-07:00

I am on a quest for a low carb bread. Breads are so high in carbs. Bagels are even worse! I ordered low carb bagels from Western Bagels but Lili didn't like them. I can't say I did really either - HOWEVER - I discovered they make "bagelettes" which are a perfect size for snacks and are only 16g carbs each! YUM!http://www.westernbagel.comMy other recent discovery is Ciabatta bread - sandwich loaf

Michellenoreply@blogger.com0tag:blogger.com,1999:blog-31973542.post-1154385813529262462006-07-31T15:34:00.000-07:002006-07-31T15:43:33.530-07:00

One month ago I was diagnosed with Type 1 diabetes. This means I have to take insulin shots every day, count the carbs in all my meals, and check my blood by pricking my fingers at least 5 times a day. If I had one wish, it would be to have a cure for this so I will never have to do these things again...Our family has formed team Hi Lili Hi Lo for the JRDF (Juvenile Diabetes Research Foundation)

Michellenoreply@blogger.com0