Wednesday, December 23, 2009

Wednesday, December 09, 2009

Traveling Diabetes Exhibit Hits a Vein

Exhibit to Open in Detroit on December 5 Before Embarking on Three-Year U.S. Tour
Nearly 24 million Americans are living with diabetes, including an estimated 5.7 million who remain undiagnosed. Beginning this fall, a new touring exhibit called Diabetes: A Deeper Look will help to educate the American public about diabetes and diabetes treatment options, including insulin.
Detroit Science Center
Traveling Diabetes Exhibit Hits a Vein

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Saturday, November 14, 2009

Monday, October 05, 2009

Oregon JDRF Walk 09!

We had a great day at the walk yesterday! This was our tent, we had a Pippi Longstocking theme and asked everyone to wear two different socks. It was a ton of fun, and we surpassed our team fundraising goal, which was very exciting. Thanks everyone who joined us yesterday!

Thursday, September 24, 2009

JDRF Walk Team Tshirts Hot off the Press!

Went to see the first strike-offs of the new t'shirt design at Abra Kazam and they are gonna be awesome! Again a HUGE thanks to Amy Ruppel for her magnificent design. I can't wait to wear it! We are also printing a few special edition canvas tote bags that will be given as prizes, so crank up that fundraising and you might be the lucky winner!

Monday, September 21, 2009

Babystar sells Sneakers for a Cure!

sample sale at baby star on 9/25 from 9am-2pm!
please join us for our big blow-out sample sale this friday, september 25th! we will have amazing prices on our amazing baby star clothing and accessories and other brands are joining the fun too ... bunk bots, eleven collection shoes, hula mula, knuckleheads, picaflor kids and simple shoes.

baby star sample sale
friday, september 25th
9am - 2 pm
1801 nw upshur st., suite 560

buy a sneaker for $1 at the sale to support the JDRF!

Sunday, September 13, 2009

Seaside Stop & Go's Sell Sneakers for a Cure!

Two Stop & Co Convenience Stores in Seaside Oregon have "stepped up" to sell sneakers for a cure for our JDRF walk team! If you are heading out to the beach, make sure to stop in and say hello and buy a sneaker!
There are two locations
1625 N Roosevelt Dr
860 S Roosevelt Dr
Thanks Stop & Go!!!

Saturday, September 05, 2009

Westmart Sells Sneakers for a Cure

Westmart market in Westport, Oregon is selling sneakers for the JDRF and team Hi Lili Hi Lo. We drove out to visit them today and were excited to see their wall of sneakers growing! They sold 10 while we were there, and hope to sell about 100 more over this busy labor day weekend holiday. Lili counted about 150 on their walls, and added one of her own as well.
If you are heading out to Astoria on Hwy 30 be sure to stop in and say "hi". Rumor has it that Westmart has the best Jo Jo's west of the Mississippi!

NWIBL Hits Home Runs for a cure!

The Northwest Independent Baseball League and the MOSA Umpires have joined Hi Lili Hi Lo in our fundraising efforts this year. NWIBL pledged to donate $10 for every homerun hit this season and they hit 24 out of the park! The umpires also got into the game after they met and talked with Lili, and made a generous donation of their own. Pictured here are some of the illustrious home run hitters and umpires at an all star game.
Thanks NWIBL and MOSA for your support!

Hi Lili Hi Lo 09!

Our new team t'shirts designed by the fabulous Amy Ruppel, portland artist and designer who graciously designed our shirts for us this year. This lovely shirt can be yours if you join our team and raise $50
The JDRF Walk to Cure Diabetes in Portland is on October 4th at Oaks Park. To join or donate to our team please click on the links on the right side of the page.
We hope you will join us again this year!

Thursday, July 02, 2009

JDRF Children's Congress meets the President!

click here to see the CC09 delegates and President Obama. My delegate is at the very beginning smiling at the camera.

We plan to keep up the momentum and plan some exciting meetings here in Oregon for the Promise to Remember me Campaign in August. If you have not yet signed up to be a mobile advocate click on the handy link to the right and join all of us who want a cure for type 1 diabetes.

Meanwhile to learn more about these events and future Children's Congress applications visit their website at

Thursday, June 25, 2009

JDRF Children's Congress Day 3

Updating this post with a great link to the senate hearing and some photos.
click here for the PR Newswire testimony coverage.

Mary Tyler Moore spoke candidly about how her eyesite has been drastically comprimised due to complications from type 1, and Sugar Ray's "No Mas" speech was incredibly moving.

Nick Jonas was compelling and quite brave to speak openly about his frustrations about having type 1, and Dr. Griffen Rodgers mentioned Sonya Sotomayer and how she was an incredible role model for the children's delegates, which I thought was timely.
The Children who testified had as important, if not even more moving accounts of living with type 1, but the audience had thinned out significantly by then. I was proud of all the delagates. It was crowded and hot and uncomfortable in that room and not a single kid misbehaved or worse, had a medical need.

Standing in line to get tickets to go to the top of the Washington Monument blogging from my sister's phone. Blitz was busy, busy busy after a success Senate Hearing.L got to experience the paparazzi and crazy fans for a serious event with an important message.We are proud of the celebrities for their personal accounts and moving requests for funding.highlight of the day was riding the "Congress only" underground train between the Russel Building and the Capitol with Senator Merkley.Didn't have my camera. Hope to post pictures soon.Good article on PR Newswire and Will post libks soon.

Tuesday, June 23, 2009

JDRF Children's Congress 2009 Day 2

Well, it was quite an eventful day at Children's Congress! The kids were all taken to the white house this morning to meet the President and were surprised with a guest appearance by Nick Jonas! A rock star and a world leader - how will I ever top that next summer! There is an article on the people website that talks a little about this event
In addition to that we were all invited to hear comments from an all-star panel of mentors which included Jared Allen, Alisa Weilerstein, Kalilah Allen-Harris, and Aaron Kowalski. The highlight for me was getting to see Mary, a personal hero of mine.

Mary Tyler Moore speaking at the Town Hall "Role Models in Diabetes"

Monday, June 22, 2009

JDRF Children's Congress Day 1

Just turning in from our first day in DC for the JDRF Children's Congress. We learned about a half an hour ago that the 150 children delegates will get to meet and take a picture with President Obama tomorrow morning. This is a really amazing suprise and everyone is very excited about it!
The photo is of the kids rehersing the Promise to Remember Me song to sing on the steps of the capital on Wednesday. It was a treat to be at the rehersal - I was amazed that all the kids knew the song really well and sang in tune (well, with the exception of one enthusiastic and loud child!)
Tomorrow will be another full day of events and training for the Blitz meetings on Wednesday.
It was a beautiful day here, a bit warm, but windy, so the sky looked beautiful and made the city picture perfect.

Friday, June 19, 2009

off to JDRF Children's Congress!

We are off to Washington DC to represent Oregon at the 10th JDRF Children's Congress. We are so excited to get this opportunity to make a difference and to be able to speak about why we feel it is so important to continue to fund research and programs to help find a cure for type 1 diabetes. It will be three years for L on June 26th. Can't think of any better place to be than in DC for this event! And yesterday it was announced that Nick Jonas of the Jonas Brothers will be there to testify to congress. Now that is "like totally awesome!"

Sunday, March 22, 2009

Growing up Again with Mary Tyler Moore

Mary Tyler Moore's new book Growing Up Again: Life, Loves, and Oh Yeah, Diabetes, will be in book stores March 31st. It is sure to raise much needed awareness about type 1 diabetes. She is donating all the author's proceeds from book sales to the JDRF. Thanks Mary!
She will be appearing in these shows:
March 24th - Late Night with David Letterman
March 31st - Good Morning America
April 2nd - The View
April 6th - the Rachael Ray Show
April 22nd The Bonnie Hunt Show

Sunday, March 08, 2009

The 2009 DiabetesMine™ Design Challenge

The 2009 DiabetesMine™ Design Challenge

Welcome to the 2009 DiabetesMine™ Design Challenge, an online competition to encourage creative new tools for improving life with diabetes.

Do you have an idea for an innovative new diabetes device or web application? This is your chance to win up to $10,000 to realize your design concept, and potentially help transform life with diabetes for millions of people.

This competition is open to all. We welcome entries from any individuals or organizations passionate about diabetes and product design ― patients, parents, caregivers, students, entrepreneurs, developers, engineers, etc.

We also welcome entries from kids under age 18, which will be judged in a separate category.

Three winners will be selected to receive the following prizes:

* $10,000 in cash for the Grand Prize winner;

- plus a mini-workshop with Health and Wellness experts at the global design and innovation firm IDEO;

- and one free access ticket to the “innovation incubator” Health 2.0 Conference planned for October 2009 in San Francisco, CA

* $5,000 cash for the “Most Creative Idea” category winner;

- plus a consulting session with IDEO design experts

* $2,000 cash for the winner of the Kids’ Category

The contest is open for submissions from March 2, 2009, to May 1st, 2009, at 11:59 pm Pacific time. Winners will be announced on Monday, May 18th, 2009.Submissions are accepted in the form of a 2-minute video to be uploaded to the DiabetesMine YouTube channel, or a 2-3 page written “elevator pitch” plus supporting graphics, also to be uploaded online. For details on entering the contest, visit the Enter the Contest page.

Submissions will be judged on three basic criteria:

• Relevance – how well does it solve a real-life problem for people living with diabetes?

• Clinical Efficacy* – how realistic and applicable is this product from a medical standpoint?

• Aesthetics – it’s the look and feel, Baby! How appealing is the pure design?

*Note that the “Most Creative Idea” category will reward the most visionary entry, even if it’s not quite ready for prime time from a clinical efficacy standpoint.

To get your creative juices flowing, you can view the many cool entries from last year by clicking here for the videos and here for the paper entries. Last year’s winners can be viewed here: LogforLife and Maximum Slide.

Remember, good design can be applied to anything, even something as “low-tech” as a carry case for fast-acting glucose.

Let the innovation begin!

Sunday, February 01, 2009

Adopt Jacop the Diabetic Cat!

We met Jacob at the Oregon Humane Society today. Jacob has diabetes and we hope we can find a home for him. Here is the link to how to adopt or sponsor him:

Name: Jacob Code Number: 72222 Date Available: 12/7/2008 Adoption Fee: $35

Breed: Domestic Short Hair/Not Specified Pattern: Brown Tabby Color: Brown Tabby/White

Gender: Male Age: 10 Yr Weight: 15.0625 lbs. Location: Cattery - R

Jacob is a very sweet guy who needs a loving person in his life. He is very affectionate and loves to talk. He can be a little shy at first, but once he gets to know you he loves to be by your side. Jacob is diabetic and will require some extra care; talk to a staff member to learn more about his needs. He has lived with children before and is ready for a new home; come meet this special cat!

Saturday, January 24, 2009

JDRF Children's Congress 09

We have great news to share! Liliana was selected to represent Oregon in Washington DC this June as part of a 150 member Children's Congress!
She wrote an essay addressing several required topics and was selected out of 1500 applicants. She will attend meetings with our Senators during a "hill blitz" and experience advocating for a cure for type 1 diabetes in our nations capitol. We are all amazed and excited!
Check the JDRF webite for news and updates about our adventure. I will also post news here.
Thanks for all your support!