Friday, December 28, 2007

Type 1 Survival Kit day at the 100th Monkey Studio

We had a great day making bracelets at the 100th Monkey Studio today. We had so much fun designing the syringe caps and making them into beads! We made almost 50 bracelets!

Next step is to put the written piece together and bring it to the hospitals next week. I have templates for kids and parents to fill out. If you want to send your story and advice let me know and I will send you the template to fill out.

Thanks to everyone who came out today to support Type 1 diabetes!

Thursday, December 06, 2007

Diabetes Survival Guide

Calling all T1s, their parents, and their silblings

I am putting together a
Newly Diagnosed Survival Guide
to bring to families who are in the hospitals over the Winter Holiday.
So many kids are diagnosed this time of year I thought it would be a good thing to do.

I would like to include your blogs, stories, advice, recipes, anything you would like to share,

Thanks (in advance) for posting!

Wednesday, August 01, 2007


Planter Girl, 2007, 16x20 framed $165, 10x8 unframed, $85
Dunes, 2007, 16x20 framed $165, 10x8 unframed, $85

Two of my photos which are in an art exhibit in Portland, OR Aug 3 - Sept 8th.
I am donating all my proceeds to the JDRF.

If you want to purchase them please call the
100th Monkey Studio

or click on the link

Tuesday, June 26, 2007

Thursday, June 14, 2007

Rock Against Diabetes 1

Rock Against Diabetes NW announces Tom's Ride 4 a Cure, a bicycle journey to spread awareness about Type 1 diabetes and raise funds for the Juvenile Diabetes Research Foundation. All funds raised go toward Tom Kilman's goal of $4,000, with which he will be able to represent Oregon in the JDRF Ride to Cure Diabetes in Whitefish, Mont., Sunday, Sept. 23.

Kilman, who is not a professional bicyclist, is doing the ride to help his son, Henry, who was diagnosed with Type 1 diabetes nearly three years ago, at the age of 2.

The ride is Thursday, July 12 through Monday, July 16. The five-day ride covers more than 330 miles. Kilman will hit the road in Scappoose and head north on U.S. Highway 30 to Astoria on the first day. After leaving Astoria, he will go south on U.S. Highway 101 to Lincoln City, then back up Highway 18 past Grand Ronde to Newberg, and finally from Newberg through Hillsboro, Beaverton and Portland and back up Highway 30 to Scappoose.

Anyone can visit the rest stops along the route to learn about Type 1 diabetes and offer support. For more information or to make donations visit

Rock Against Diabetes NW is a nonprofit organization to raise money to fight juvenile diabetes. Photo courtesy the Kilman family and Rock Against Diabetes NW.
Tom's Ride 4 a Cure
Thursday, July 12 through Monday, July 16.

Starts in Scappoose, will pass through Astoria July 12, then to Lincoln City, Grand Ronde, Newberg, Hillsboro, Beaverton, Portland and back to Scappoose.

Tuesday, June 12, 2007

Stacy is Type 1, Part 2

Portland is probably the only city in the universe where you can ride an ariel tram to visit the doctor. This was what we did for L's clinic appointment recently. Clinics are nerve-racking enough. Add flying in the air several hundred feet above freeways, mountainsides, and houses, and you've got yourself a swell day planned.

All sarcasam aside, I bought the second graphic novel to give to L to read while we were at the clinic appointment and she was beside herself thrilled!

And thanks to all of you for your comments - you should check out the graphic novels illustrated by Raina Telgemeier. They are a bit updated from the 1980's original books, and the comic book format is cool.

I set up a link and you can buy it right from this blog! Happy Reading.

Sunday, May 13, 2007

No way Mom! Stacey is Type 1, too!

"Who is Stacey?" I ask half listening as I was driving L to school the other morning.
"She is one of the babysitters" she answers impatiently.
"What? You don't have a sitter named Stacey," I respond, suspiciously.
"No, Mom, you don't get it. Stacey is from the Baby-sitter's Club - you know, the book?"
Oh, yeah, the book we got from the library that is now at least 3 weeks overdue. I had forgotten about that.

"I'm going to see if they got the facts right," she continues as I am smiling to myself. That is so cool - a roll model in a book she likes with type 1!

If you have a tween type 1, check out these books. They are from a new line of "Graphix" which are more like comic books:
Stacey's Great Idea
The Truth about Stacey

Monday, April 02, 2007

Magical Mystery Cure Stamps!

We have gotten some amazing items for our inspired item basket! One of the coolest in my oppinion is that we made stamps with the Magical Mystery Cure design I drew. You can make stamps with your artwork or photos at a few different places on the web - we did it at

Postage is going up to $.41 by the way!

Monday, March 19, 2007

Magical Mystery Cure

We are putting together and "Inspired Item" package for the JDRF gala auction inspired by Beatles songs!

So far we have
A silver heart braclet (St. Pepper's Lonley Heart Club Band)
The Beatles Anthology DVD Box Set

Our wish list includes:
Gift certificate for coffee (So Tired)
Gift Certificate to a book store (Paperback Writer)
A Guitar (While my guitar gently weeps)
Roll Over Beethoven (Symphony tickets or piano lessons)
TIckets to Omsi (Yellow Submarine)
Tickets for Amtrack or Air travel (Day tripper)
Tickets to Oaks Park or Enchanted Forest (Ticket to Ride)
Note cards, stationary (Please Mr Postman)
A kite (...for the benefit of Mr Kite)
Diamonds (Lucy in the sky with diamonds

If you have an idea or can donate an item please let us know! Our deadline is April 6th

Sunday, March 11, 2007

JDRF Hope Gala

The 8th Annual Hope Gala
May 5, 2007
The Governor Hotel
Portland, Oregon
6 p.m.

Honoring Albert Menashe
2007 President of the Oregon State Bar

Special recognition to
Dr. Andrew Ahmann from
Oregon Health & Science University

Cocktail party and silent auction with music by Alfredo Muro Latin Ensemble
Presentation of the 2007 Living & Giving Award to Albert Menashe
Gourmet candlelit dinner and live auction full of limited one-of-a-kind items
Enjoy live music by the Swingline Cubs

For more information, sponsorship opportunities, or early reservations, please call the JDRF office at 503.643.1995

Interested in volunteering or joining a committee for the Gala?
Call JDRF at 503.643.1995 or email

Thursday, February 22, 2007

A Burden with Every Bite

Balancing goldfish crackers, apples, and insulin shots.

A burden with every bite
Grappling with a child’s diabetes
By Louanne Moldovan
February 14, 2007

In our home, food wields great power. It nourishes, of course. It also instills fear, worry, hope, and dread. It must be handled with great care, as it is conscientiously counted, weighed, measured, and timed. One moment, it is approached with anxious urgency; another, with grateful relief. It requires occasional bargaining, negotiating, cajoling, and even pleading. Now, I am a grand swindler; next, a mad scientist.

These intense emotions reside in the act of feeding our nine-year-old daughter, Alex. Just after she turned five, Alex was diagnosed with Type 1 diabetes.

When Alex’s doctor pronounced her test results positive, her father, David, fell to the clinic floor. It was Christmas Eve, and the hospital stay remains in my memory as a surreal, sleepless, three-day boot camp in diabetes training. When we prepared to leave, the doctor likened our departure to going home with a newborn. But without the joy.

From her first spoonful of organic brown-rice cereal, Alex was raised on healthy, natural food. For her, the idea of treats invariably outweighs the amount she actually eats. Alex can enjoy the occasional ice cream, sometimes even with a cone. Her endocrinologist reminded us of the importance of letting her be a child.

For Alex, eating a treat might result in high blood sugar, but this is less harmful than the psychological and emotional toll its forbiddance could cause. I will always remember the first birthday party we attended after her diagnosis. I made sure her slice of cake was a small one. She stared at it in awe; then, with a quiet joy, she ate every crumb. To finish, she picked up the plate and licked off every shred of frosting.

Alex receives insulin injections for each meal and most snacks. We have to carefully calculate the number of carbohydrates in her food and then draw up the appropriate amount of insulin. This is where the total carbohydrate figure listed under a package’s nutrition facts is critical. Protein is a “free food,” and does not need to be counted.

Instead of “picky,” Alex prefers to call herself a “selective” eater. As a professed vegetarian — she is a big animal lover — her menu is somewhat limited. We routinely use a scale, measuring cups, and our tired brains to compute the number of carbs Alex will eat in her meal or snack.

But Alex, being a child, doesn’t always eat what is given her. If she doesn’t finish, we go into a repressed panic, offering any variety of potentially appealing carbs. This is surely one of those times where my more laissez-faire approach comes into play, as I suggest an (organic) cookie or half a piece of toast, while her dad proposes a chunk of banana or cup of milk. Only rarely does she wish she could eat more, but not enough to warrant getting another injection.

Restaurants, parties, holiday meals, or event vendors present special challenges, as we are reduced to guessing as closely as possible what the carbohydrate count might be in a certain food. This hasn’t gone very well for us; we usually wind up with frighteningly high blood sugars. Again, with my more lenient attitude I will try not to make a big deal about an extra piece of bread or drink of lemonade.

However, there are consequences to pay for even the slightest excess of carbs. When Alex has low blood sugar, she feels faint, weak, and hungry. When her blood sugar is high, it is as though another personality overtakes her. She becomes whiny, emotional, and inconsolable.

One day Alex told me, “Mommy, when I’m low, it’s in my body. But when I’m high, it’s in my feelings.”

Later, when I berate myself for my indulgence at Alex’s expense, a silent, uneasy concern over such long-range complications as blindness or heart, liver, or kidney disease looms in my mind.

The other night, when I was about to give Alex her sixth injection of the day, she looked up at me and said, with utter conviction, “Mommy, don’t give me a shot. Please don’t give me a shot.” She was not whining, she was not wailing. Soberly, simply, she made her plea. And she repeated it again, and again.

Our child would simply like to be able to grab an apple or a cracker and eat it spontaneously — without interruption, without it being weighed and sliced down to an acceptable amount, without poking her finger or injecting her arm, without grave consideration.

I could only hold my daughter in my arms and tell her I was sorry. And I wept, tears that had come before, that will surely come back again, as reliably as hunger in an empty belly.

An award-winning screenwriter and recipient of the 2005 Oregon Book Award for drama, Louanne Moldovan is the founder and artistic director of Cygnet Productions, a literary cabaret theater company in Portland, Oregon. Currently, she works as a writer, actor, and director for several production companies in Portland.

The Needle
Alex’s father, David Morrison, founded The Needle, a small shop that donates all proceeds from its sales of used books, household items, and vintage oddities to juvenile-diabetes research and education. 1420-A SE 37th Ave, Portland, Oregon. 503-234-7662.
Copyright © 2006–2007 Culinate, Inc. All rights reserved.

Saturday, February 17, 2007

Fundraising for Gales Creek Camp! Part 2

Thanks to everyone who has donated to Gales Creek Camp so far! Look at the Six Degrees badge to the right to see how many donations we have and how much we have raised! This is great and exciting news! The only bummer is I have no idea who donated...if you want to be anyomous, thats cool, if not, please leave a comment in the comment box for this post.

Also, when you make a donation, you have an option to send an e-card to me. Please consider doing this so I can thank you!

If you are interested in learning more about Gales Creek Camp visit their website

Friday, February 09, 2007

Fundraising for Gales Creek Camp!

Check out my new charity badge at the top of my blog! I recently discovered this cool fundraising contest from another D-mom and decided to check it out for myself. I was excited to see that I could fundraise for Gales Creek Camp - which I hope to send L to this summer.

So, if you are feeling generous, please make a donation by clicking on the link on the badge. The six badges that have the most number of donations between January 18th and March 31st at 11:59pm ET will get a matching grant from Kevin Bacon of up to $10,000.

Saturday, February 03, 2007

Not Content Just to Survive With Diabetes

Wednesday, January 31, 2007
The Oregonian

T he day his 2-year-old daughter, Becca, was diagnosed with Type 1 diabetes, was the worst day -- and the best day -- of Ralph Yates' life.

The fact that he was a successful doctor and an Iron Man triathlete didn't mean diddly. He couldn't cajole Becca's body to produce insulin.

He was just as angry, sad and worried as the rest of the parents in the pediatric intensive care unit, hovering helplessly over their offspring, wishing they could turn back time.

"The things that were so important to you before," Ralph Yates says, "lose all significance."

The family's goal: Keep Becca healthy. Maintain normalcy.

So, Laurie Yates baked birthday cakes with artificial sweeteners. She bought art supplies so her neighbors could give a trick-or-treating Becca something besides candy. And she attended every field trip, class party and swim meet, ever ready to give Becca an insulin shot or a snack if her blood sugar got low.

To keep it fair, the Yateses were as intensely involved in their other child's life, too.

"They're amazing people," says son Trevor Yates. "And the fact that Becca is such a complete and successful person is in a large part due to how they raised us."

For more than a decade, Ralph and Laurie Yates coped with being on edge. The couple slept with their bedroom door open. They regularly checked to make sure Becca was breathing. And when she stayed overnight somewhere, Laurie Yates showed up every few hours to check her daughter's blood sugar.

And yet, the Yateses couldn't always stop a sleeping Becca from slipping into a diabetic seizure. Becca even wrote a school essay about what it felt like to almost die.

"It broke our hearts," Laurie Yates says. "Every now and then, the disease kicks you in the teeth to let you know it's still there."

Eventually, the couple had enough of feeling helpless. In 1995, they organized a bike-riding fundraiser. The first year, Summit To Surf ( ) had 187 riders and raised $21,000. Last year, the 11th annual event had 1,300 riders and raised $317,000.

Ralph Yates is on the board of the American Diabetes Association's National Research Foundation, which is meeting in Portland this weekend. He is also the region's campaign fundraising vice chairman.

For three years, Laurie Yates has been chairwoman of the Portland Diabetes Expo, which will be Saturday at the Oregon Convention Center. (See ) She also co-chaired last year's American Diabetes Association auction, the national organization's largest single-night money raiser.

Over 12 years, the couple has brought in $3 million for diabetes research. They regularly solicit large donors, speak at conventions and encourage researchers around the country to keep looking for a cure.

And though Becca is a 25-year-old college grad who has lived on the East Coast for seven plus years, they still worry daily about her health.

"When you deal with a chronic illness, you need to know there is hope out there," Laurie Yates says. "And you, sometimes, have to make that hope happen."

Becca Yates considers her parents unsung heroes. But they say the same about her and other diabetics, who are chased by death every day.

Notes Laurie Yates: "There is no 'time out' when they are exhausted, overwhelmed, or need a break."

A hero, then, is all a matter of perspective. Whether you make lemonade or curse the bitter taste. Whether you merely survive with diabetes or fight to find a cure.

"If bad stuff has happened to you, make it mean something," Ralph Yates advises. "Then there's some value to what you've been through. Otherwise, it's just a bunch of sad stories."

S. Renee Mitchell: 503-221-8142;

Tuesday, January 30, 2007

The Sharps Hath Overflow-ith

Well, we have reached the "full" line on our first 2 gallon sharps container, the cute pink one they gave L at the hospital.
I estimate it contains 420 hypodermic needles.
Not counting mistakes, of which there have been many tossed in the bin...
420 plus mistakes.
420 injections my kid has barely complained about.
420 shots in her arms, thighs, and tush.
420 times one of us has said, "L, it is time for your shot."

Four hundred and twenty.

Well, off to metro tomorrow to dispose of it properly.

Saturday, January 27, 2007

Pancreas Sandwich

I have a history of Diabetes in my family. My dad has type two, his sister had type one (she was diagnosed when she was 11), and my husband's father also has type 2.

On December 25th, my dad, who is 70 was hospitalized for renal failure (kidney failure). We were told he had less than 24 hours to live. While my youngest sister flew out from Maine, my other sister and I juggled hospital visits, finding a place for our dad's dog, looking for missing keys and phones, and keeping our wits about us.

My dad has had type 2 diabetes for 25 years. He has a rare condition called Charcots foot which is a complication of diabetic neropathy, has heart disease (and has had several heart attacks), and he has an HMO.

He was treated sucessfully while he was hospitalized with a "slurry" which meant he didn't have to have dialasis. That was good news. The frustrating news, however was that his A1C was 14 and we couldn't get his blood sugars in the target.

It is now the end of January. We are still trying to manage this. He hit a 170 once, that was encouraging, but still has numbers in the high 2-300s. He has no stamina and therefor cannot exercise. He has told me that he gets winded just walking to his mail box.

I have been taking him to doctors appointments, running errands, and doing a bit of stuff around his house. I urged his physician's assistant (whom he sees regulary) to get him a case worker who could help me navigate what help was available for him and get more help in place as I plan to return to a contract job in 3 weeks. One of the hope I had was to get him on a meal plan that works with his insulin dose, as a nutritionist did with my daughter when she was diagnosed.

This seemed like a reasonable request, however, I recieved a call last night at 7:30 PM from the PA reprimanding me for asking for an appointment to see a nutritionist.

"Your father has seen the nutritionist many times over the years, what are your expecting to accomplish from this appointment?"

(Is this professional? Do doctor's assistants call their patients children after hours on Friday nights to yell at them?)

"Well, I was hoping to work out a carb count to get his meals working with his insulin doses and get his numbers in the target," I answered.

"Type two is not type one," she patronised, know ing I care for a type 1 child. "He knows all this stuff and can take care of himself."


This advice from a PA who didn't think to give my dad an insulin pen until I asked (his hands shake so much he couldn't hold a syringe) and who missed the fact that my dad's kidney's were failing several days before he was hospitalized and sent him home with a diagnosis of a fast heart rate...

Will someone please explain to me the best way to get my dad's blood sugars in the target without exercise and shed some light on this for me?

Sunday, January 21, 2007


Yesterday my husband left for a weeklong trip to Asia for work. We were both nervous about me handling L's diabetes round the clock without any breaks. We wrote lists, reviewed our notes, made more lists, hung them on the refrigerator, checked our supplies, checked again, and tried to to be nervous or stressed out infront of L.

When he left we both felt okay that things would be okay. "I promise the week will go fast and we will be too busy to worry" I assured him. But in the back of both of our minds I know we both know I don't get up on time, tend to get stressed out, and am not as good about keeping on a schedule as he is.

So I made a promise to myself to not worry. It is only one week, and the main thing for me is to not beat myself up if I get off schedule, or if L's numbers are out of wack.

Day one was going to be FUN. L & I had a great afternoon. We went shopping on Hawthorne Blvd, went to the books store, toystore, record store, card shop...We planned for a trip to Ben & Jerry's for afternoon snack, and ran into some friends along the way. No worries.

Then came dinner time, time to test, time for insulin.
"Mom, where is my emergency kit?"
(Gee, L, I don't know. Maybe one of the 15 places we have gone to today?)
ARRGH...what??? Out comes the phone book.
I call everyplace I could remember we had gone...
I called the doctor and had her call in a perscription for a glucagon shot so I'd have one in my house.
(Don't loose you mind, I kept telling myself...)
We have dinner, I try not to get angry - I know L is stressed and feels bad, but I am not going to start out my week as a single D-parent with us both feeling bad.

We have dinner and go get the shot, which is ready about 8:30PM. I invite L to spend the night with me in my room so we can both get a good night sleep and continue our search in the morning.

At breakfast L tells me she had a dream that she found her kit.
"Maybe it is at your studio, Mom"
I didn't think of that, I had stopped there to get something before we came home for dinner.

Okay, we'll check there.
Its there

we can handle this...

Thursday, January 18, 2007

Flash Carbs

This has been one of our favorite tools to learn about diabetes over the last 6 months. We have these in the car and in magnet form on the fridge. They are designed to help figure out carb counts for foods. The design is great (although a live "chicken" on the poulty card is a bit more disturbing than say, a fried chicken leg...)

they have other terrific prouducts on their website
check them out!

Sunday, January 14, 2007

Diabetes Art Therapy Support Group for Kids
This group will run one time per month (the third Thursday) and is lead by Beth Ann Short ATR. This art therapy group is for participants 18 and younger. This group furnishes older kids with the opportunity to be role-models/mentors to younger children newly diagnosed. Younger participants will see hope in their stories. The Diabetes support groups are led by a Master's Level Art Therapist.Groups will be structured with a check-in time, a short art directive and time for members to process and discuss art created. Each week the group will be led using an art therapy experiential to explore feelings and struggles using a specific directive that will serve as a vehicle for group conversation. Some topics addressed in this group include when participants first were diagnosed, needles, family support and tips for managing in our busy world. A healthy snack will be available.
It is recommended that participants call or email within 24 hours of the group to RSVP
1/18, 2/15 & 3/15 from 6:30-7:45pm
This group is paid weekly with a drop-in rate.
Members: $10.00 per session Non-members: $15.00 per session
Scholarships available, please ask a monkey for qualifications.All materials included.

Wednesday, January 10, 2007


ALERTU.S. House of Representatives to Vote on H.R. 3 TOMORROW!Contact Your Representative by TOMORROW!
As a result of all of your hard work over the past few years, House Speaker Nancy Pelosi has made expanding federal support for embryonic stem cell research a top priority for the new Congress. Continuing the momentum that we’ve worked so hard to build by securing another victory in the House on stem cell is extremely important. We need to generate as many different communications as possible to the House in order to pass it.
We need you to complete the following 3 steps:
Click on the link below to our Take Action page. Review the letter supplied and enter your personal story in the paragraph provided. Including your unique and personal story is the key to getting your Representative’s attention. Your letters will be faxed automatically to your Representative’s offices upon completion.
Once you have completed your letters, dial the toll free number below to connect to your Representative’s office. When prompted, enter your Zip Code, and you will hear a brief message reminding you what we would like you to say.
1-800-730-7074Your federal Representative is: Rep. Earl Blumenauer
Forward this Action Alert to as many people as you can and urge them to participate in contacting their Representatives in support of H.R. 3.
Thank you for taking the time to help JDRF. Your efforts are what have made this vote possible. Thank you again for helping us get one step closer to finding a cure!

Saturday, January 06, 2007

Gretchin's Necklaces!

I had these necklaces made for holiday gifts by an amazing local artist Gretchin Lair. The "Imagine a cure" tag hands in front of the "type 1 diabetes". You can custom order these and other designs from her. Check out her website:

Tuesday, January 02, 2007

Mom, I want to say the F-word to diabetes

Last day of Winter break. I wanted to do something fun with L so I planned to meet some friends for lunch and then go to a matinee. I asked her to test in the car on the way to the restraunt and she was over 433.

433? What? That is really high. Her target is 80-180. We had started the morning with a mid 200s, but 433? I didn't know what to do. Do I give her the regular amount of carbs for lunch? Do I give her a correction dose of insulin?

I had her call T - I couldn't find my phone, so we used her emergency phone and I read him back her numbers so he could call the doctor and see what to do. By the time our friends walked into the restraunt I was in tears and knew I was going to have to cancel lunch. How was I going to explain that to L?

She was not happy with my decision and in the car ride on the way back home she said, "Mom, I want to say the F-word to diabetes." "Me too," I assured her. Me too...

I called two D-mom's I know while I was waiting for T to call back with the Doctor's instructions and they both knew what I was going through. It was so helpful to talk to them. I hadn't had a freak-out like this in ages. It was certainly magnified by the other chaotic events over the last week. They both explained how they do correction doses, and when I heard back from T, that is what Dr. B suggested we do.

I gave her an extra unit of Humalog at lunch, and another at dinner plus one of Lantus. The happy ending is that her bedtime number was 118. Good night!

Monday, January 01, 2007


We rang in the new year watching L scale a 41 foot rock climbing wall like spider woman. She is proud of the bruises on her knees and can't wait to do it again. I didn't panic once during her climb (compared to the rock climbing camp she took this summer when I sat outside waiting to breathe for four hours a day) and was truely excited when she made it to the top of the wall - not because she over came her condition, but because she has been working on this goal for 6 months!

There was a cranky woman (it was kids climb, first come first serve) who thought L was getting more instruction then her kids, so I had L test right next to her. It was more for the shock factor than anything and also to get L to come off the wall and give her kids a chance to climb. Okay - it was mainly for the shock factor. She left shortly after, so it must have worked!

We havn't been on much of a schedule this holiday, and L's numbers have been less than stable. Bounce-a-rama...We ranged from 62 to 278 today. Go figure. She told me she had a dream that her number was over 1,000 and she was forced to go on a pump. She said it was really scary and old and she didn't want to do it. I didn't realise how afraid she is of the pending end to her honeymoon.